Join the international LHON (Leber Hereditary Optic Neuropathy) community for a free Facebook live event on the inaugural LHON Awareness Day on Monday 19 September 2022.

2021 "The Importance of Technology for LHON Patients"

Technology can make an immeasurable difference to someone with LHON. It can enable vision impaired people to maintain independence, perform in jobs that otherwise would be inaccessible to them, excel in education, participate in social activities, and accomplish everyday tasks.

But keeping up with new technology can be challenging and time consuming. Michele Landolfo is an expert on the use of technology by vision impaired people.  He will share key information about how technology can improve the quality of lives of people with LHON.

Michele will be joined by members of the LHON community from around the world who will discuss the impact of technology on their lives. They will share the successes they have had with different technologies.

During this interactive event, questions can be posted and will be addressed by the speakers.

Follow us on social media to hear the latest updates;

Facebook, Instagram & Twitter

Event details

Time: 17:00-19:00 CET

Date: Sunday 19 September 2021

Event access details: Facebook Live event. Simply come to the @InternationalMitoPatients Facebook page, at 17:00 CEST and the event will appear. 

Email Jo de Bry to request access information is sent directly to you: jodebry@mitopatients.org

***Now you can watch the recorded video here! (Please click)***

LHON Awareness Day is part of World Mitochondrial Disease Week.

LHON Awareness Day is hosted by IMP. Thank you to the members of the LHON EU group who initiated the establishment of LHON Awareness Day in 2020.

IMP has worked with experts in LHON to produce a brochure aimed at patients, their families and ophthalmologists. Please download it and share it with your eye doctor and with others to help them understand more about LHON.

The brochure is currently available in English and Italian. It will be translated into other languages where possible.

LHON_Brochure_English

LHON_Brochure_Italian