Here're some events you can join. When your events are confirmed, please let us know via the form below.
6 - 8 SEPTEMBER 2023
Forza4Energy4All
The Dutch Energy4All Foundation organise Forza4Energy4All again! It is a 3-day sporting challenge in the Italian Alps. Various teams will climb three mighty mountains; Gavia, Mortirolo and Stelvio by bike, running and/or walking.
During these days you give all your energy for children with an energy metabolism disease.
12 SEPTEMBER 2023
TK2D Awareness Day
12 September is the inaugural TK2d Awareness Day.
Thymidine kinase 2 deficiency (TK2d) is a rare genetic type of mitochondrial disease. TK2d is a myopathic form of mito - which means people affected suffer severe muscle weakness.
16 SEPTEMBER 2023
Energy for Life Walkathon - Kansas City
United Mitochondrial Disease Foundation invites you to join them for a special day at Lowenstein Park in Lee's Summit, MO where the mito community from across the region will gather to connect and raise funds for mito research, support, education, and advocacy.
16 - 23 SEPTEMBER 2023
MITO Estafette 2023
A special relay that connects more than 60 mito families. the four routes pass the homes of patients with mitochindrial disease and families who have lost a loved one. they bring each other the green relay heart and take it further to the next one by bicycle, car, truck, wheelchair, scooter and walking to name a few ways. The finish of the 4 routes will be in Nijmegen, where the expertise center is located and the drug research of Khondrion (with Prof Jan Smeitink).
The Dutch foundations Energy4All Foundation and Join4Energy have joined forces and organized this event.
17 SEPTEMBER 2023
Energy for Life - Columbus
Join United Mitochondrial Disease Foundation for a special day at the Wolfe Park Shelterhouse in Columbus, OH where the mito community from across the region will gather to connect and raise funds for mito research, support, education, and advocacy.
17 SEPTEMBER 2023
Mito and NF Parent and Carer Support Group
Mito Foundation and Children’s Tumour Foundation are delighted to partner for this dedicated parents and carers support group.
You can join a safe space to connect, share experiences and offer support to others raising a child with mitochondrial disease (mito) or neurofibromatosis (NF).
17 SEPTEMBER 2023
2023 Energy Walk and 5K
Gather your team and get ready to go for a walk all together while raising awareness for mitochondrial disease! Whether you walk as an individual, create a team or volunteer, you’re making a difference in the lives of patients and families who rely on us. Your fundraising helps MitoAction change the future of health for every mito patient, here and around the world.
This family event offers support, friendship, and fun for everyone!
18 SEPTEMBER 2023
CHOP Mito Education Day
Children’s Hospital of Philadelphia (CHOP) is hosting a full-day virtual event for mito families and clinicians. Speakers include world-renowned mitochondrial disease clinicians and researchers from CHOP, the University of Pennsylvania, and other organizations.
18 SEPTEMBER 2023
LHON – Midwest Connect
United Mitochondrial Disease Foundation invites you to join. This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
18 SEPTEMBER 2023
Parent and Caregiver Virtual Support Meeting
United Mitochondrial Disease Foundation invites parents and caregivers impacted by mito. You will get to know each other, share resources, and build community!
18 SEPTEMBER 2023
Seminarios
18 – 22 SEPTEMBER 2023
Mito Corner
Mitocon inaugurate spaces and informative materials at six hospitals in Rome, Padua, Bologna, Naples and Milan, to spread awareness of mito.
19 SEPTEMBER 2023
Annual Leigh Syndrome Symposium
Join Cure Mito Foundation 's virtual conference 'Empower & Inspire: Understanding and Accelerating Research for Leigh Syndrome'.
Researchers, industry, patients, and patient families are welcome. This year they'll be providing a live translation to more than 30 languages.
19 SEPTEMBER 2023
LHON Awareness Day
Join the international LHON (Leber Hereditary Optic Neuropathy) community for a free live online event "LHON and the Family" on the inaugural LHON Awareness Day. (17:00-19:00 CEST - Zoom)
To register, please email at Jo at IMP.
19 SEPTEMBER 2023
LHON – Southwest Connect
United Mitochondrial Disease Foundation invites you to join. This call is for those living in the Southwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.
19 SEPTEMBER 2023
Mitochondrial Day
Our friends the LHON Eye Society and Chiesi Pharma AB in Sweden will be raising awareness of LHON through a day of talks, a fun run and evening dinner on 19 September in Stockholm. The event is intended to promote greater understanding of the impact of lifestyle changes (such as exercise) on LHON and all are welcome.
The days talks will be held in person at Karolinska University or can be watched via Zoom (the events and presentations will be given in Swedish).
To read more about the event and to register, please see the PDF details in Swedish and English.
19 SEPTEMBER 2023
Ateneo Alapa-Hec
Tenemos el placer de invitarlos/as a participar del próximo Ateneo que organiza 𝗝𝗮𝘇 𝗠𝗶𝘁𝗼𝗰𝗼𝗻𝗱𝗿𝗶𝗮𝗹𝗲𝘀 𝗔𝗿𝗴𝗲𝗻𝘁𝗶𝗻𝗮 junto al Hospital El Cruce y ALAPA - Alianza Argentina de Pacientes 🤝 dentro del marco de la 𝗦𝗲𝗺𝗮𝗻𝗮 𝗠𝗶𝘁𝗼𝗰𝗼𝗻𝗱𝗿𝗶𝗮𝗹 📅
🩺 Destinado a pacientes, familiares y personal de salud.
🗓 Martes 19 de septiembre
⏰ 12:00 (horario de Argentina)
🖥️ Modalidad Online (Zoom) | ID de reunión: 856 3042 6564 | Cód. de acceso: 2023
📍 Hospital El Cruce - Nestor Kirchner Hospital El Cruce
20 SEPTEMBER 2023
Moms of LHON-Affected “Kids of All Ages”
United Mitochondrial Disease Foundation invites mom of someone affected by LHON. Consider joining the call and sharing your experiences with others in a similar situation.
20 SEPTEMBER 2023
Ask the Mito Doc: Best practices within a mitochondrial care network team – navigating patient care
United Mitochondrial Disease Foundation offers the Ask the Mito Doc Webcast Series on a monthly basis to keep patients and families connected to the mitochondrial medical community.
Each month, they will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians and guest speakers.
20 SEPTEMBER 2023
UMDF Virtual Capitol Hill Day
United Mitochondrial Disease Foundation is setting up more than 100 meetings between members of Congress and UMDF advocates to encourage mito-friendly legislation like research funding, a permanent telehealth expansion, the Medical Nutrition Equity Act, and more.
20 SEPTEMBER 2023
Drawing workshop for kids
Association Guerrier Mitochondrial will hold a drawing workshop for kids at a hospital lobby.
21 SEPTEMBER 2023
Press Conference at Senato della Repubblica
Mitocon wil be holding a press conference at the Senate of the Republic of Italy (Senato della Repubblica) about the legislative path to mitochondrial donation.
20 – 21 SEPTEMBER 2023
Webinar seires
Join Mitocon's webiner!
"E- MIT PRESENTATION OF THE SCIENTIFIC SOCIETY" Prof. Carlo Viscomi – Padua University
"REATMENT OF EPILEPSIES” Prof. Michelangelo Mancuso – Pisa University
21 SEPTEMBER 2023
LHON – New York, New Jersey, Pennsylvania Connect
United Mitochondrial Disease Foundation invites people living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation.
21 SEPTEMBER 2023
UMDF and MEPAN Special Virtual Meet the Researcher Webcast
United Mitochondrial Disease Foundation is working with MEPAN families to bring together patients, families, researchers, and clinicians virtually to connect with each other and to learn about what is happening on the MEPAN research front.
23 SEPTEMBER 2023
Energy for Life Walkathon - Detroit
United Mitochondrial Disease Foundation invites you to register and fundraise in theie walk in Detroit. On the virtual event day, they will go LIVE on the event specific Facebook Page for the opening ceremony to celebrate their teams as they fundraise toward their goals. Gather together on walk day with family, friends and the mito community!
23 SEPTEMBER 2023
Information stand at a hospital
At Hôpital Jeanne de Flandre chu de Lille, Association Guerrier Mitochondrial will have an information stand to raise awareness of mito, with fact sheets and quiz. You're invited to come and join us, discuss and learn about mito.
18 - 24 SEPTEMBER 2023
Walk N’ Roll 4 Mito
Canadians across the country walk, run, ride, scoot, and use their energy to move for Walk N’ Roll 4 Mito. Founded by MitoChampion, Louise Gibson, in 2015, Walk N’ Roll 4 Mito is expanding beyond it’s Mississauga, Ontario roots to welcome teams in Calgary and Winnipeg. Our ultimate goal is to ensure all lives are powered by healthy mitochondria.
20 SEPTEMBER 2023
FACE it - Awareness Campaign/ Childhood Dementia Day
Mitochondrial disorders account for 20% of the children diagnosed with childhood dementia. Globally, that means around 10,000 babies are born each year that will develop childhood dementia due to mito.
Thousands of Australian children are suffering and dying slowly from dementia, most will die before they turn 18, some will die in infancy. It’s time to FACE it.
One of the biggest problems is that no one knows childhood dementia exists. Let’s make sure governments, researchers, social and health care professionals, and communities know that this is a problem we cannot ignore. No family should be left to watch their child suffer and die.
Now that you know, make a difference. Paint your face, or better yet ask a child to, take a picture of how you look and make it your profile picture on Linkedin, Facebook, or Instagram. Link to our page https://www.childhooddementia.
#faceit #childhooddementia
21 SEPTEMBER 2023
Mitochondrial Disease Day
The World Mitochondrial Disease Week is on September 18-24, 2023. To celebrate the week and to spread the mito-message, the University of Helsinki mitochondrial disease researchers open the doors to the world of mitochondrial research!
Join in and learn about mitochondrial diseases and research. The program includes research presentations, patient talks and answers mitochondrial-questions by physician-researchers.
The event will be streamed via Zoom webinar where the presentations will be simultaneously translated into English.
23 SEPTEMBER 2023
Light Up for Mito
Light Up for Mito is a global campaign whereby landmarks around the world will be illuminated in green to raise awareness about mito.
24 SEPTEMBER 2023
Digital Rural and Remote Mito Information Day
Join Mito Foundation's first ever Digital Rural and Remote Mito Information Day, which will focus on the needs of those living outside of the capital cities.
Mito community members will hear from expert speakers and have the chance to have their questions answered.
24 SEPTEMBER 2023
Butterfly Run London 2023
Join the Lily Foundation! Butterfly Run London is about people of all ages and abilities taking part and challenging themselves to run, walk or wheel a 1k, 5k or 10k race.
24 SEPTEMBER 2023
2023 Energy Walk
Gather your team and get ready to go for a walk all together while raising awareness for mitochondrial disease! Whether you walk as an individual, create a team or volunteer, you’re making a difference in the lives of patients and families who rely on us. Your fundraising helps MitoAction change the future of health for every mito patient, here and around the world.
This family event offers support, friendship, and fun for everyone!