When your events are confirmed, please let us know via the form below.

16 - 18 SEPTEMBER 2022

Heidelberg, Germany

LHON annual meeting in Heidelberg

You’re invited to join LHON Deutschland!

The main conference will take place on Saturday, September 17th, 2002 in the Marsilius College (Neuenheimer Feld 130).

In order for the next meeting in 2022 to be as successful as our last meeting, we will start planning soon. Our AG team would be happy to receive support with the design or a variety of impulses.

7 - 9 SEPTEMBER 2022

Italy

Forza4Energy4All

The Dutch Energy4All Foundation organise Forza4Energy4All again! It is a 3-day sporting challenge in the Italian Alps. Various teams will climb three mighty mountains; Gavia, Mortirolo and Stelvio by bike, running and/or walking.

During these days you give all your energy for children with an energy metabolism disease.

17 - 25 SEPTEMBER 2022

the Netherlands

MITO Estafette 2022

A special relay that connects more than 60 mito families. the four routes pass the homes of patients with mitochindrial disease and families who have lost a loved one. they bring each other the green relay heart and take it further to the next one by bicycle, car, truck, wheelchair, scooter and walking to name a few ways. The finish of the 4 routes will be in Nijmegen, where the expertise center is located and the drug research of Khondrion (with Prof Jan Smeitink).

The Dutch foundations Energy4All Foundation and Join4Energy have joined forces and organized this event.

19 SEPTEMBER 2022

Virtual
Worldwide

LHON Awareness Day

Join the international LHON (Leber Hereditary Optic Neuropathy) community for a free live online event "The Importance of Technology for LHON Patients" on the inaugural LHON Awareness Day

Follow us on social media to hear the latest updates; FacebookInstagram & Twitter

18 SEPTEMBER 2022

New Jersey, US

Energy for Life Walk - Delaware Valley

United Mitochondrial Disease Foundation invites you to register and fundraise in theie walk in New Jersey. On the virtual event day, they will go LIVE on the event specific Facebook Page for the opening ceremony to celebrate their teams as they fundraise toward their goals. Gather together on walk day with family, friends and the mito community!

18 SEPTEMBER 2022

Perth, Australia

The Bloody Long Walk in Perth

Join Mito Foundation's signature event! Walk 35km from beautiful South Perth to Cottesloe Beach. It’s 35km of huffing, puffing and laughing out loud with your favourite walking buddies!

18 SEPTEMBER 2022

Columbus, US

Energy for Life Walkathon - Columbus

United Mitochondrial Disease Foundation invites you to register and fundraise in theie walk in Columbus. On the virtual event day, they will go LIVE on the event specific Facebook Page for the opening ceremony to celebrate their teams as they fundraise toward their goals. Gather together on walk day with family, friends and the mito community!

19 SEPTEMBER 2022

Virtual
US

LHON – Midwest Connect

United Mitochondrial Disease Foundation invites you to join. This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

19 - 20 SEPTEMBER 2022

Virtual
Argentine Republic

Semana de las mitocondrias

ALAPA Enfermedades Mitocondriales Argentine invites you to join their in-person/virtual sessions. Hear from guest speakers, mito patients, families, students, researchers and doctors.

  • In person: 19 and 20 September 9am - 2 pm
  • Virtual: 22 September 12 - 2pm. They will also be broadcast on YouTube. 
  • Venur: Faculty of Exact and Natural Sciences, University City of Buenos Aires

20 SEPTEMBER 2022

Virtual
US

Empower and Inspire: Understanding and Accelerating Research for Leigh Syndrome

Co-hosted by Cure Mito Foundation and integrative Cardiovascular Metabolism and Pathophysiology Laboratory (iCaMP) at Boston University. Hear from the world's leading researchers, doctors, data experts, and patient families!

20 SEPTEMBER 2022

Virtual
US

LHON – Southwest Connect

United Mitochondrial Disease Foundation invites you to join. This call is for those living in the Southwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.

21 SEPTEMBER 2022

Virtual
US

Moms of LHON-Affected “Kids of All Ages”

If you’re a mom of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation.

23 SEPTEMBER 2022

Virtual
US

Teen and Young Adult Virtual Meet-Up

United Mitochondrial Disease Foundation invites you to join for this virtual meet-up! It is tough being stuck at home, but you are not alone. Let’s get together, share coping tips and have some FUN!

UMDF Support Ambassadors, Kristi Dellinger and Devin Shuman will lead these calls.

23 SEPTEMBER 2022

South Croydon, UK

Lily Golf Day

Lily Golf Day is a fantastic way to have fun and make a difference. All proceeds from the event go towards supporting people affected by mito

Come and join Lily Foundation for a relaxing day on the beautiful course at Croham Hurst, Surrey. There will be bacon rolls, tea and coffee in the morning, and after the game we'd love you do stay for a casual drink, and perhaps a bite to eat from the Club BBQ.

18 - 24 SEPTEMBER 2022

Virtual
Australia

Munch for Mito

Join Mito Foundation's event! Host a "Munch for Mito" and really sink your teeth into awareness raising! Spread the word about mito over morning tea, a drink with friends or even a virtual catch-up.

 

18 - 24 SEPTEMBER 2022

Virtual
Australia

Light Up for Mito eCard

Join Mito Foundation to shine the light on mito. This is your chance to be a part of Light Up for Mito – (without leaving your home!)

Buy and share the beautiful animated eCard to help brighten the futures of people impacted by mito. Your one simple act today will have many benefits.

 

 

 

24 SEPTEMBER 2022

In person + Virtual
Australia

Perth Mito Information Day 2022

Join the Mito Foundation Information Day in Perth! Attending in-person provides the unique opportunity to speak directly with health providers, researchers and community members.

 

 

25 SEPTEMBER 2022

Virtual
JAPAN

Mitochondrial Disease Patient and Family Forum

This is the second forum in Japan, co-hosted by two patient groups mitochon MCM and Mitochondria Midori no Kai, joined by prominent Japanese mito researchers.

This symposium will bring together the researchers and mito community from all over Japan. Please register before 4 September.

TBA SEPTEMBER 2022

Australia

FACE it - Awareness Campaign/ Childhood Dementia Day

Thousands of Australian children are suffering and dying slowly from dementia, most will die before they turn 18, some will die in infancy. It’s time to FACE it.

One of the biggest problems is that no one knows childhood dementia exists. Let’s make sure governments, researchers, social and health care professionals, and communities know that this is a problem we cannot ignore. No family should be left to watch their child suffer and die.

Now that you know, make a difference. Paint your face, or better yet ask a child to, take a picture of how you look and make it your profile picture on Linkedin, Facebook, or Instagram. Link to our page https://www.childhooddementia.org/faceit and make a donation! Make sure everyone knows that children with dementia matter, and it is time we face it.

#faceit #childhooddementia

24 SEPTEMBER 2022

Worldwide

Light Up for Mito

Light Up for Mito is a global campaign whereby landmarks around the world will be illuminated in green to raise awareness about mito.